To Charlet and her army.

A little under 2 years ago, quite by chance, I came across an online support group called UKCVFamily. That summer I joined 3 of their, now, trustees and 2 other members in Parliament. 

This was the first time I’d ever met other injured people in person and I was welcomed with open arms, smiles and hugs. Little did I know then that these people would become dear friends of mine. 

In fact, I had no idea quite what was going to be achieved over the next few years. Had I been asked, I certainly wouldn’t have been able to list all the things that have been achieved. 

But yesterday, something monumental was achieved in front of the nation and the world. Charlet Crichton took to the stand at the UK Covid-19 Inquiry to face questions on the mammoth witness statements she and 5 others formulated for the Inquiry.

Over 400 pages of evidence, testimony and overall bad-assery, was produced over the last 18 months. This alone has been a full time job for Charlet, who did this without question or complaint while juggling her own health issues as a result of the vaccines. How she’ll be able to escape an MBE after yesterday, I don’t know! 

When she sat there yesterday, oozing professionalism and composure, she articulately put across the concerns of the members when questioned. She batted down notions that none of us really know whether the vaccines made us sick – this one actually made my own bloody boil, but Charlet corrected this with such calm and composure. The last few months have been especially hard for our trusty leader, but she’s never once let up on the gas.

Yesterday was the culmination of all that hard work and it was an honour to watch her and be able to say, “I know that woman, she’s actually a great friend and inspiration of mine.”

I’m in awe of what this woman has created and achieved. I wasn’t there when she founded UKCVFamily, something that was created because while Charlet was suffering in the early days of her injury she saw a need among others to have a safe space. Putting aside her own suffering, during which she was helping with global support groups for vaccine injured, she created a UK safe haven. 

Of course there are others who joined her in these journeys, not least the other Trustees – Caroline, Brian, Claire and Sarah. The ones who have held each other up and kept each other going throughout all this work for the Inquiry, alongside all the other work that has happen to make UKCVFamily a charity, to gain huge support from MPs, to speak to the press, to support the other volunteers who help run the online support groups, to arrange regular meetings online with health practitioners for the members and produce advertisements to help let other injured and bereaved find us. Of course, I can’t not mention the other volunteers, like myself, who each play their own role in keeping the groups runnings, keeping morale up and keeping our members safe. 

That’s just a VERY short list of some of the things the team has achieved for this community. What they’ve done since the start of Module 4 I couldn’t even attempt to list. 

I’m in an incredibly fortunate position, in that I am surrounded by inspiring people. I’m in a doubly lucky position to be able to say I’m glad I was vaccine injured. You won’t hear many say that because none of us can ever be happy that this happened to us. But, had it not happened to me I wouldn’t have met Charlet. I wouldn’t have met the other trustees and found deep friendships among the other volunteers. I spent a long time not feeling like I belonged and not feeling like I was where I was supposed to be, and then I joined this incredible team and community who each day make me a better person, who inspire me to do the absolute best I can for this community and who hold me up when I am struggling.

But mostly, I will forever be grateful to say “I know those people, they’re great friends of mine and they inspire me.”

Please take a short moment out of your day to watch Charlet and her mic-drop moments from yesterday, even if you’re not injured. In fact, especially if you’re not injured. 

2025 so far.

I suppose I have a lot to update everyone on, or to put pen to paper (metaphorically) and face everything I’ve had going on so far this year. 

I suppose I’ll start with the most exciting thing for me personally; I have a foster dog!! He’s some kind of large mix breed, larger than Bella, who’s had a terrible start to life. He’s around 18 months old and has spent his life so far shut outdoors in a grotty 5×7 yard that was full of crap (rubbish and crap crap!). I saw a video on Facebook, and he had the same eyes and the same ‘love me’ look that Bella had, so needless to say I didn’t waste time in offering to help. 

Since his arrival a week ago, the main focus has been on his health and letting him decompress. He’s very underweight and so he’s on some super high protein food. He’s also had his first vet visit which has resulted in medicated wash and steroids. His first bath was hard work, requiring both mum and I, but Tuesday I managed to bath him alone and it was hard but successful. He’s a swift learner! 

He’s already getting to know and understand basic commands since his arrival on Friday, and today he had his second walk around the block. Walks aren’t the focus, he’s never had them so it will take conditioning, but he was getting cabin fever. His second walk, again on my own this time, was absolutely incredible! He’s a LOT of dog who doesn’t know his own strength, actually he probably does and he’s spent 18 months having to rely on it. So of course I’m teaching him that he doesn’t need it anymore, he will always get the care, love and everything else he needs. Again, he’s a quick learner and each day he’s doing even better and decompressing and becoming more relaxed. 

He’s not showing to be reactive in any way, curious about everything new (which is almost everything), but not reactive. He is an absolute dream and if I can get the introductions to Pru to keep being as successful then I would consider this a failed foster, but I’m trying to not get ahead of myself. SO much of him reminds me of Bella, like all his tan patches are her he’s tan and white). It feels like she put him in front of me, and I’m very grateful she did! 

Next up of course is the Covid-19 inquiry Module 4 which started Tuesday. This covers vaccines and therapeutics. The work the trustees and volunteers at UKCVFamily put into this the last 18 months is phenomenal and I’m incredibly proud of them all. After 4 years for many, we have the biggest platform the vaccine injured and bereaved have EVER had and all evidence and witness statements will be published for the world to see. Though the world is already seeing this live. It’s both triggering, upsetting and very much worth celebrating. There are so many positives to counteract the negatives (such as the gov admitting they knew there would be adverse reactions and they didn’t nothing to plan for them!), but mostly this will bring so many future opportunities for help for the injured and bereaved. It’s historic and I’m proud to be a part of it. 

Wednesday I FINALLY got a call from the Spinal surgery orthopaedic unit at the RUH for an assessment on Monday. This should hopefully lead to them approving the right referral for a CT myelogram to see what my nerves are doing, or not doing. So fingers crossed!

After a bumpy start to the year with my health, a few weeks of really clean eating has vastly improved my energy and pain levels. Though pain is taking a little longer to respond. But it was just in time for Riley’s arrival, and since he’s been here I’ve not been suffering so badly with insomnia. I’m still up at 5am each day, which blows, but by taking each day steady and eating well I’m coping and ending the day without depleting my body battery. This includes the constant training and enrichment with Riley and I’ve bathed him twice.

The last few days I’ve been flagging a bit more as I’ve picked up some extra admin work with the Inquiry, which is fine because it’s nothing compared to the amount of work the Trustees are putting in both before and during this module! But it has taken a little dent out of my progress, unsurprisingly. 

And yesterday the postman visited with a very special parcel, addressed to Bella Price. Just before I said goodbye my wonderful friends – Han, Darcy, Kalie and Laura – clubbed together to get me a nose print necklace. It arrived in time for me to do her nose prints with the kit supplied, and yesterday the final product arrived. Bella is forever only one boop away and I really feel whole having that, especially with Riley’s arrival as the guilt I feel is a little heavy at times. I get little pangs of guilt when I notice myself experiencing joy and fun, especially when rolling around on the floor while Riley smothers me in kisses. I hope if Bella is watching she’s happy knowing how lovely it is to find myself with a dog that has all her best qualities. 

I also want to mention some of the members of UKCVFamily. Due to our confidentiality, I won’t mention names, but should they read this they know I will be discussing them. As you know, I’ve been fundraising to buy a powered chair that would enable me to do a lot more, and in time, when he’s conditioned to, take Riley for the long walks he deserves. Some of the incredible members have been beyond generous. I’ll never be able to thank them for that, not in a way that feels fitting at least. Within 2 weeks they’ve raise £370 on my fundraiser by sharing, donating themselves and one even asked for donations in lieu of birthday presents for a milestone birthday. To find myself among the best of humanity has been the greatest gift to come out of our shared journey. So to each of you, thank you. It really does mean the world and I’ll be forever grateful to have crossed paths and made the friendships I now cherish dearly.

Anyway that’s all from me for now. I’m sure I’ll have more updates soon, but for now I’m out of energy and just wanted to share a little check in.