On Tuesday I had a doctor’s appointment – the same doctor as my last appointment following all my blood tests. She’s agreed for now to let me work with the dietitian to bring my cholesterol down, she’s agreed the signs of liver stress are likely medication related, she’s absolutely did not advise me to take magnesium threonate to help with my insomnia, and she’s referred me for the CT mylography that I was supposed to have previously, but as we know I was sent for the wrong one. She ordered this scan, no questions asked, despite the previous doc refusing and advising I ‘get on with it’ – meaning my crumbling health. All in I’d say this was a huge fucking success. All that in one appointment! Plus more but it was little things. What a dream of an appointment!
Wednesday I had my first session with the functional medicine coach. It was largely a lot of talking, more of a discovery session. He’s certain that I can get my body behaving better to allow me to live far beyond what I can do now. I was honest in my hesitation to trust that, so we’ll see. It’ll be a long road either way. But this weeks challenge is grounding – to stand barefoot in the rain, once. My favourite soul cleansing activity. And I have the adult equivalent of a star chart!!
Today I met with the dietitian the doctor (as above) referred me to over the reactions to food and medication. I’m to eat as much ‘normal’ food as possible and log it so she can have more data and information on reactions I’m having. So less of the safe chicken salads I’m having – which I’ve finally started to enjoy rather than endure. So mild bummer, but it sounds like I’ve just been prescribed roast dinners and lots of yummy stuff. Which sounds amazing, but does make me anxious of the reactions, but I do understand she needs more data to try and figure them out. She’s also going to talk to a colleague who is a long covid dietitian in the private sector. Many vaccine injured have similar conditions to those with long covid, and that’s includes the likes of Mast Cell Activation Syndrome (MCAS) which she is querying, especially if she can’t find an obvious intolerance in the food diary. So whilst no help yet, she’s got an open mind and is willing to go the extra mile to ensure she helps me as best as she can, even if that comes down to admitting her colleague is better placed to help me.
I’m fucking exhausted. Every day there has been an appointment, with yesterday being the dentist. So this has meant washing and dressing daily, driving daily, constantly interrupted rest and a very unsettled Bella who has made the rest even less restful.
Those little moans aside, it’s been a week of success for me. The help isn’t immediate, but I suddenly seem to have found a doctor and a dietitian who are willing to do what’s necessary to help me get answers and some stability with my health. Along with the functional medicine coach, David, who hopes to help me in a more holistic way. Maybe come Christmas I’ll be shovelling turkey and gravy in me by the ladle without worrying how my body will react. A girl can dream, and this lady is missing her gravy. Especially as we’re heading into stew season!